Saturday, February 1, 2020

"It's A Girl Thing" Turner Syndrome Awareness 2nd Annual Blog Hop


Hello Blogging Friends!!



Welcome to my post for the GIGANTIC "It's A Girl Thing" Turner Syndrome Awareness 2nd Annual Blog Hop!  



More than 32 years ago my daughter, Julie, was diagnosed with Turner Syndrome. I found that many doctors were not familiar with TS and for me this is where my journey began.  I spent hard days and long nights trying to learn everything I could about TS and how I could help my daughter.  Receiving the diagnosis was only the first step on a lifelong path of searching for acceptance and understanding.

TS is a complex condition with ear and hearing issues being one aspect, which Julie faced.  She had numerous ear infections and eventually needed surgery to put tubes in her ears.  I informed the ENT that TS girls ears were different but the surgery failed ~ a situation that could have been avoided with awareness and education. Without experienced professionals to guide us, making medical decisions for Julie was an ongoing struggle.  After this, we decided to commute to Children's Hospital in Philadelphia where the specialists were more familiar with TS.


When Julie was an infant, the geneticist told my husband and me to keep Julie's TS diagnosis a secret because others would treat her differently.  I now know that staying silent will not help my daughter, or any girl affected by TS, access the care she needs.  Working together to raise a greater awareness encourages the medical field to do much needed research on how TS affects girls and women throughout their lives.  This is the reason I started this Turner Syndrome Awareness Blog Hop!!  I am very fortunate that the Crafting Community is such a generous community and that so many Companies and Card Designers have joined me to spread awareness!!  Please shop at the Sponsors stores and please leave some love on the awesome Card Designers Blogs!!


Prize Winners will be announced on February 15, 2020.



Thirty-six caring Sponsors and nine DT Members are offering prizes to commenters and they are helping bring Turner Syndrome Awareness to the Public. For details on how you might win any of these fabulous prizes, please see Lori's TS home page. Thanks for learning about Turner Syndrome.



Nine talented and caring designers are offering prizes on their personal blogs as well:


My TS related project is inspired by the TSA official Mood Board:



Here are my cards I that I made for this blog hop and they are for sale on my Cards for Charity page with 100% of the money being donated to the Turner Syndrome Foundation!






I will be offering 2 prizes on my blog!  The first one will be to a random commenter on this post.  The second one will be to a randomly picked person who donates to the Turner Syndrome Foundation through the link below.

My first giveaway is to a random commenter on this blog post and it is these 3 dies:



My second giveaway is to a random donor and it is a brand new Tonic Tim Holtz Stamping Platform:



To become eligible for this prize you can make a donation (Any Amount) to the Turner Syndrome Foundation with the link below between now and February 7th.  The random donor winner will be posted on my blog and also on the "It's A Girl Thing" Turner Syndrome Awareness 2nd Annual Blog Hop  page on February 15th.



Here is a link if you would like to make a donation to the Turner Syndrome Foundation:  https://tsfusa.salsalabs.org/onlinefundraising/p/lorikobularsfundraisingpage/index.html


Please be sure to leave some love for all the wonderful Card Designers!  Go back to the main post here to go to the next blog and be sure to leave a comment on the main page too!


I will be posting more cards that I made for this blog hop during the week, all the cards are up for sale on my Cards for Charity Facebook page for  $3 each with 100% of the money going to the Turner Syndrome Foundation.

Thanks so much for stopping by!!

Lori


 


12 comments:

  1. Lovely rose heart card and sweet fairy card. Thanks for bringing awareness to this syndrome.
    slrdowney at hotmail dot com

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  2. Hello beautiful Julie!! :) Lori, I'm so thrilled to be apart of this blog hop with you and your daughter to spread awareness about this and the more I read, I'm still learning even after a year! Your creations are so beautiful with the pretty pink tones and soft details! A lot of heart went into all of this my friend! Sending hugs and best wishes to Julie!

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  3. Hi, I believe knowledge is power so keep spreading the news! The more we know the better we understand.

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  4. Beautiful cards and such wonderful interpretations of the TSA mood board! Thank you for sharing Julie's story and for bringing awareness to this little known syndrome.

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  5. Lori~I had no idea about TS. Your daughter looks amazing and is blessed to have you in her corner. Thank you for having me~it is a pleasure to create for and support your cause.

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  6. Thanks for sharing the information about TS through your blog hop.
    Beautiful cards! I love the rose heart design, and the gorgeous angel and wings on your second card!

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  7. Marisela Delgado said: Great cards. May God bless you. mariandmonsterd@yahoo.com

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  8. Your cards are beautiful! Thanks for all the work you did for this hop!

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  9. Thank you for the information you provided. It can NOT be easy. It is not only hard for your daughter, but for you and your husband.... I really like the light pink card you made with the angel. It is very sweet...

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  10. Beautiful cards for a beautiful cause! I especially love the wing card, so soft and the sentiment is just lovely.

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  11. Such gorgeous cards! This is such a wonderful and informative hop.

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I love reading your comments! Thanks for taking the time to write one! I appreciate the feedback!